OI Research Update: Longitudinal Study

BBDC Research Update: Longitudinal Study On September 22, 2022, the OI Foundation was joined by Dr. Reid Sutton (Geneticist at Baylor College of Medicine, Administrative Director and Principal Investigator of…

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COVID-19 Survey 3 Results

Thank you to all of the 577 OI community members who took the time to fill out the OI Foundation’s third COVID-19 survey! Our goal in gathering the community’s input…

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OI Research Update: New Medical Treatments

On March 15, 2022, the OI Foundation spoke with Dr. Brendan Lee, Principal Investigator for the Brittle Bone Disease Consortium (BBDC). In this interview, they discussed new drugs being studied…

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Research Announcement: ORBIT Study

The OI Foundation would like to bring your attention to a research study being conducted by Ultragenyx Pharmaceutical Inc: The Ultragenyx Orbit clinical study is for individuals living with osteogenesis…

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OIF Research Update: Mental Health and OI

Thursday, November 18, 2021   |   6:00 PM During this session, Dr. Reid Sutton (Geneticist at Baylor College of Medicine and OIF Medical Advisory Council member) and Dr. Eric Storch (Vice-Chair…

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Consortium Spotlight: BBDC

This month, the Brittle Bone Disorders Consortium was featured as the Consortium Spotlight by the Rare Diseases Clinical Research Network. The Brittle Bone Disorders Consortium is part of the National Institutes…

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