Thank you for joining us at OIF National Conference 2024 in Omaha, Nebraska!
We want to hear from you!Please take a moment to provide your feedback by filling out the OIF National Conference Evaluation Survey! Your feedback will help shape future OIF Conferences. Click hereto complete the survey.
Recorded Sessions:
Please click the session titles below to watch session recordings.
From July 19th – 21st, members of the OI community will come together for three days of specialized sessions on managing OI, panels on living well with OI, peer to peer sessions, and fun social events for attendees of all ages! If you are joining us in Omaha, we can’t wait to see you!
Unable to attend? Click on the session titles below to register to join us virtually on Zoom!
We need YOUR help to proclaim National OI Awareness Week (May 4 – 11, 2024) in every state!
To request a proclamation in your state, follow the steps below.
Click on your state below.
Suggested Proclamation Request Language and Suggested Proclamation language are available here. If required, you may copy/paste this into your proclamation request form.
When you receive your proclamation, please send an electronic version to gbeug@oif.org. If you did not receive an electronic version, please send a photo of the mailed proclamation.
National OI Awareness Week is a week dedicated to raising awareness for OI and sharing your Unbreakable Spirit®. OI Awareness Week is scheduled around Wishbone Day (May 6), the international OI Awareness Day. Each year during National OI Awareness Week, OI community members request state proclamations, hang flyers, hold events, and share social media posts to raise OI awareness.
On September 22, 2022, the OI Foundation was joined by Dr. Reid Sutton (Geneticist at Baylor College of Medicine, Administrative Director and Principal Investigator of the Brittle Bone Disorders Consortium, and member of the OIF Medical Advisory Council and Board of Directors) to discuss the Longitudinal Study of Osteogenesis Imperfecta. This study, also known as the Natural History Study, is the largest research project ever conducted on people with OI. Dr. Sutton discussed the design of the study, its goals, and what researchers have learned so far. Watch this session recording below.
Participate in the Longitudinal Study of OI! The purpose of this natural history study is to perform a long-term follow-up of a large group of people with osteogenesis imperfecta (OI). Information collected will include medical history, number of broken bones, surgeries done, medications taken, ability to walk, pain, lung function and breathing, hearing, and bone mineral density. The overall goal is to improve the health and quality of life of people with OI. Click hereto learn more and determine if you are eligible to participate.
Save the Date! OIF Regional Conference: Kansas City Saturday, November 5, 2022 The OIF is excited to announce the next Regional Conference will be held in Kansas City, Missouri, on November 5! This 1-day meeting will be co-chaired by Dr. Eric Rush and Dr. Jean-Marc Retrouvey and will be held at the Embassy Suites by Hilton Kansas City Plaza. Speakers will present on topics related to understanding and treating OI and will address pediatric and adult health concerns. More information and registration will be available at www.oif.org/event/regionalkc.
Thank you for joining us at OIF National Conference 2024 in Omaha, Nebraska!
