Dear OI Community Member,
The IMPACT Survey is an international survey aimed at capturing and quantifying the real impact OI has on people’s lives to enable better diagnosis, treatment and care, and to support availability of potential future treatments for OI. The results from this survey will be used to enable better healthcare services for both children and adults and to support availability of potential future treatments for OI.
If you have OI, or are a parent/caregiver of a child with OI, we need to hear from you! Make an IMPACT on the future of OI research by completing the first-ever GLOBAL OI survey at: www.impactsurveyoi.com
If you began taking the Impact Survey but did not complete it, please be sure to return to the website to fully complete and submit the survey.
Please take a look at the flyer below for more information. If you have any questions, please contact the OI Foundation at bonelink@oif.org.
Thank you so much for your participation!