Exciting new data update from Ultragenyx!
Today, Ultragenyx announced Interim data from the Phase 2 portion of the Orbit study, which showed that treatment with setrusumab
OIF E-Newsletter: October 2023
  The OIF E-Newsletter is here! Click here to read this issue!  
What We’re Learning from a Natural History Study
From the BBDC: Osteogenesis Imperfecta Over Time: What We’re Learning from a Natural History Study To learn more about the
OIF National Conference Registration is Now Open!
Learn more and register for the 2024 OIF National Conference today!
OIF E-Newsletter: September 2023
The September E-Newsletter is here! Click here to read this issue.
August E-Newsletter
The August issue of E-News is here! Read about becoming a Support Group Leader, OI Research Updates, and upcoming OIF
OIF Regional Conference: Phoenix, AZ
Register for the OIF Regional Conference in Phoenix, AZ!
Apply to be an OI Support Group Leader!
Apply to be an OI Support Group Leader! Applications are due by August 25, 2023 The OI Foundation recognizes the
RAREis Global Advocate Grant
We are so proud to have been awarded a 2023 #RAREisGlobalAdvocateGrant by Horizon Therapeutics RAREis Program which recognizes our contributions
OIF E-News: July 2023
  The July E-Newsletter is here! Click here to read this issue.