An Important Part of the OI Foundation Research Program
The Brittle Bone Disorders Consortium is part of the National Institutes of Health Rare Diseases Clinical Research Network. It is a multi-center program that focuses on understanding and providing better treatment options for all types of osteogenesis imperfecta (OI).
What this Means to People with OI
This program will speed up the pace of research and put useful information into practice much quicker than otherwise possible by:
- Using the skills of experienced researchers from many institutions
- Creating access to research centers closer to where people live; making participation easier
- Expanding educational opportunities for healthcare providers
Consortium Members
The Brittle Bone Disorders Consortium is a group of physicians, researchers and educators who are focused on learning more about osteogenesis imperfecta and developing new and better treatments to improve the care of people with OI.
Clinical Sites:
- Alfred I. duPont Hospital for Children/Nemours
- Baylor College of Medicine – Administrative Core
- Children’s Mercy Hospital
- Children’s National Medical Center
- Hospital for Special Surgery
- Kennedy Krieger Institute
- Marquette University
- McGill University
- National Institutes of Dental Craniofacial Research
- Oregon Health & Science University
- Phoenix Children’s Hospital
- Shriners Hospital for Children Montreal
- University of California at Los Angeles
- University of Missouri Kansas City
- University of Nebraska Medical Center
- University of South Florida
Click here to learn more about current and upcoming Research Studies being conducted by the Brittle Bone Disorders Consortium.
Medical Education Opportunities
The Brittle Bone Disorders Consortium, with the assistance of the OI Foundation, will work to bring up-to-date information about caring for people with OI to physicians and other health care providers:
- Workshops at professional meetings
- Continuing Medical Education Course
- Video Resources
- Toolkit for Medical Professionals, on the OIF Website
- TeleECHO Clinic Series
- Medical Professional Electronic Newsletter (Email bonelink@oif.org to join the mailing list)
Fellowship Opportunities
Information about fellowships for young investigators is posted under OIF Research Grants
Current State of OI Research Video Series
The OI Foundation’s Current State of OI Research video series was created to highlight and describe the work of the Brittle Bone Disorders Consortium (BBDC). Topics include Women’s Health and Pregnancy, Dental Health, Mental Health, and New Medical Treatments.
Brittle Bone Disorders Consortium
Learn more by visiting the Brittle Bone Disorders Consortium (BBDC) website.
