We are excited to share that the Impact Survey was completed by more than 2,000 OI community members from 66 countries! The results from this survey will be used to enable better healthcare services for both children and adults and to support availability of potential future treatments for OI.
“We are thrilled to have collected the largest global gathering of data about the impact that osteogenesis imperfecta has on people with OI, families, and caregivers. This is a remarkable number of responses, and we eagerly await the first data publications,” added Tracy Hart, CEO of OIF.
The IMPACT Survey was made possible through a close collaboration and partnership between Mereo, Ultragenyx, and the OI community, led by the Osteogenesis Imperfecta Federation Europe (OIFE) and the OI Foundation (OIF). Click here to read the full press release.
