Saturday, February 22, 2025
9 AM-4 PM
Children’s Healthcare of Atlanta
1575 NE Expy NE
Atlanta, GA 30329
This one-day in-person event will include sessions and discussions on understanding and living with osteogenesis imperfecta. OIF Regional Conferences are great opportunities for new and long-time OI community members to learn from expert speakers and meet other individuals and families in the area. Session topics will include medical and orthopedic treatments, pain management, dental and mental health, as well as moderated peer to peer group discussions.
Scroll to the bottom of this page to register!
Online registration will close on February 15.
Funding is available to cover registration costs!
Please contact the OI Foundation at Bonelink@oif.org to learn more.
Please let us know when registering if you would like to use Spanish interpretation.
Por favor, infórmenos al registrarse si desea utilizar la interpretación en español.
Meeting Agenda
9:00 AM— 9:15 AM Welcome Remarks
Jill Flanagan, MD, Children’s Healthcare of Atlanta
9:15 AM— 10:15 AM Journey of OI and Transition of Care
Cathleen Raggio, MD, Hospital for Special Surgery
Laura Tosi, MD, Children’s National
Susie Wilson, OIF Southeast Regional Support Group Leader
10:15 AM— 10:45 AM Medical Management of OI for Adults and Children
Noreen Islam, MD, Children’s Healthcare Atlanta
10:45 AM— 11:00 AM Break
11:00 AM— 11:30 AM Pain Management in Adults and Children
Jim Mooney, MD, Children’s Healthcare Atlanta
11:30 AM— 12:45 PM Lunch
12:45 PM— 1:15 PM Pulmonary Care for Adults and Children Living with OI
Jonathan Poplar, MD, Children’s Healthcare Atlanta
1:15 PM— 1:45 PM Dentistry in OI
TBD
1:45 PM— 2:15 PM PT/OT for OI: From Birth through Adulthood
TBD
2:15 PM— 2:30 PM Break
2:30 PM— 2:45 PM Building Resilience as an Advocate
Michelle Fynan, PhD, LMHC, OIF Board of Directors
2:45 PM— 4:00 PM Fostering Independence in Youth
Moderated Group Discussion
2:45 PM— 4:00 PM Adult Life and Independent Living
Moderated Group Discussion
*Speakers will be available during lunch and throughout the day to meet with attendees and answer questions.
Frequently Asked Questions
Who is the OIF Regional Conference intended for?
OIF Regional Conferences are intended for OI community members and their families who live in the local area or region of the event. These are one-day meetings designed to provide opportunities to learn more about osteogenesis imperfecta and current treatment options. Individuals with all types and severities of OI are welcome to attend.
Will I be able to speak with experts and have my health concerns addressed?
There will be a designated time during each session for Q&A, and we encourage everyone to ask questions and participate.
Will there be information on adult OI health?
Yes! When relevant, speakers will address both adult and pediatric health concerns.
How much does the OIF Regional Conference cost to attend?
Registration for adults is $35 per person, and free for children under the age of 12. Scholarship opportunities are available to cover registration costs for attendees. Please email Bonelink@oif.org to learn more.
Is the OIF Regional Conference: Atlanta, GA replacing the OIF National Conference?
No, it is not replacing the OIF National Conference. While OIF Regional Conferences have some similarities with OIF National Conferences, they are distinct programs with different goals. Regional Conferences are intended for local community members and highlight local resources and physician speakers in a shorter and more intimate meeting format.
Is childcare available?
No, childcare is not available during the conference. However, there will be a kids room with activities including arts and crafts. A parent or guardian must stay with the child at all times.
Can I book a hotel room?
The OIF has reserved a small block of rooms at the Embassy Suites by Hilton Atlanta Buckhead for $149 per night. Complimentary breakfast and a shuttle to regional conference on Saturday (based on availability) is included. Discounted parking is available for $23 per night.
Click here to book your room!
Thank you to our sponsors!
