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OI TeleECHO Clinic Series

The Osteogenesis Imperfecta Foundation is excited to announce the return of the OI TeleECHO Clinic Series. The goal of this educational program is to build capacity to safely and effectively diagnose and treat osteogenesis imperfecta. The goal of this educational program, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes), is to build capacity to safely and effectively diagnose and treat osteogenesis imperfecta (OI).

The full schedule with links to register for specific session topics is listed below. Participants can also sign up to receive program reminders and updates here.

This series uses Zoom videoconferencing, and will take place on the second Wednesday of every other month at 3pm EST. In each session, faculty members or guest speakers will present a brief didactic presentation, followed by participant-led case presentations and group discussion of the presented cases. The faculty encourages participants to present case studies related to osteogenesis imperfecta at each session. Recordings of each didactic presentation are posted after each session.

The interdisciplinary faculty of the OI ECHO includes:

Jeanne M. Franzone, MD (Chair)
Pediatric Orthopaedic Surgeon
Nemours/A.I. duPont Hospital for Children - Wilmington, DE

Frank Rauch, MD
Shriners Hospital for Children - Canada
Professor of Pediatrics, McGill University Montreal, Qc, Canada

Sandesh C.S. Nagamani, MD
Associate Professor, Department of Molecular and Human Genetics and Internal
Medicine, Baylor College of Medicine, Houston, TX

CME Accreditation Statement
In support of improving patient care, Project ECHO® is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

Project ECHO® designates this live activity for a maximum of 1.0 AMA PRA Category 1 CreditsTM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

The program schedule below includes recordings of past didactic presentations and links to register for upcoming sessions of Year 3 of the Osteogenesis Imperfecta TeleECHO program. Recordings from all past sessions can be found on YouTube in the OI TeleECHO Clinic Series playlist

2/12/2025

 

Recording: Physical Rehabilitation and Mobility in the Treatment of OI
Oliver Semler, PhD
Children´s Hospital University Cologne
5/14/2025

 

 

Recording: Assessing and Quantifying Pain’s Impact on Quality of Life in Adults with OI
Lena Lande Wekre, PhD
TRS National Resource Centre for Rare Disorders
Sunnaas Rehabilitation Hospital
6/11/2025

 

Approach to Genetic Testing for OI
Erin Carter, MS, CGC - Hospital for Special Surgery
Darwin Argueta, MS, CGC - Baylor College of Medicine
8/13/2025

 

Cardiovascular Health in OI
Cathleen Raggio, MD
Hospital for Special Surgery
10/8/2025

 

Clinical and Genetic Evaluation of Nonaccidental Trauma Versus Osteogenesis Imperfecta
Natasha Shur, MD
Children's National Hospital
12/10/2025 Details Coming Soon

If you have any questions, please contact Melissa Bonardi at mbonardi@oif.org

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