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Why you should participate
Participation in OI research helps advance the scientific understanding of OI so that more and better treatments can be made available to the OI community. Take a look at OI studies and recent OI publications below.
Supporting research is an important part of the OI Foundation’s mission. Often, the success of clinical studies of a rare disorder like osteogenesis imperfecta (OI) depends on getting enough people to participate in the study so the results are meaningful. People who are interested in participating in a clinical trial are encouraged to review the fact sheet What You Need to Know about Clinical Trials. Additional information about research studies can be found on www.clinicaltrials.gov.
The following studies are currently enrolling participants:
Disclaimer: The OI Foundation is not involved in the design or management of this research, and as such, is neither endorsing nor supporting these studies. The mission of the OIF is to keep the OI community informed of all relevant studies. This information is made available as a service to the OI community.
Cardiopulmonary Study (Hospital for Special Surgery (HSS)
Hospital for Special Surgery (HSS) is sponsoring a pilot study in which researchers are exploring respiratory function and its relation…
Read MoreStudy to Evaluate Efficacy and Safety of Romosozumab (Amgen)
A multicenter phase 3 clinical trial is being conducted to study the efficacy and safety of a clinical trial drug…
Read More7710: Pregnancy in Osteogenesis Imperfecta – Part 2: Complications in pregnancy and postpartum
UCLA is conducting a Pregnancy in OI Study to classify and interpret the rates of cesarean delivery(c-section), hemorrhage, and fractures…
Read More7709: OI Wellbeing Study (Baylor College of Medicine)
The purpose of this study is to understand the mental health concerns, psychosocial functioning, and priority treatment needs of individuals…
Read More7708: Cardiopulmonary Outcomes in Osteogenesis Imperfecta
The purpose of this study is to understand the cause of the restrictive pulmonary physiology in the OI population. Respiratory…
Read More7707: Use of clear aligners for the treatment of dental malocclusion in individuals with Osteogenesis Imperfecta (Brittle Bone Disorders Consortium)
The purpose of this study is to determine if it is safe to use Invisalign clear aligners in correcting the…
Read MoreInterested in learning more about participating in Clinical Trials?
Take a look at the OI Foundation’s What You Need To Know About Clinical Trials Factsheet.
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