Research
Update on OIF PCORI Awards
The OIF has been approved for the following funding awards through the Eugene Washington PCORI Engagement Awards program, an initiative of the Patient-Centered Outcomes Research Institute (PCORI): Improving Patient-Centered Outcomes:…
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OIF Receives New Funding from the Patient Centered Outcomes Research Institute
Rare Bone Diseases account for 5% of all birth defects and virtually all rare bone diseases cause significant physical disabilities. Patients and caregivers are frequently isolated and uncertain about best…
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Thank you for participating in the Impact Survey!
We are excited to share that the Impact Survey was completed by more than 2,000 OI community members from 66 countries! The results from this survey will be used to…
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OI Research Update: Dental Health
The Current State of OI Research: Dental Health and Orthodontics Last week, Dr. Jean-Marc Retrouvey (Professor and Chair of the Department of Orthodontics and Dentofacial Orthopedics at the University of…
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LAST CALL – The Impact Survey will close Sept 30!
Don’t miss your chance to make an IMPACT on the future of OI research! Complete the Impact Survey TODAY! Participate in the first-ever global OI survey to help us reach 2,000…
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Research Updates for the OI Community
More research into OI is being done than ever before, and the complex findings and breakthroughs can be hard to understand. On Wishbone Day (May 6), the OIF launched an…
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We Need to Hear from YOU!
Dear OI Community Member, The IMPACT Survey is an international survey aimed at capturing and quantifying the real impact OI has on people’s lives to enable better diagnosis, treatment and…
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Research Update Session: Women’s Health and Pregnancy
Join the OIF for a Research Update on Women’s Health and Pregnancy OI community members joined the OIF for a conversation with Dr. Deborah Krakow, OIF Medical Advisory Council (MAC)…
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Make an IMPACT on the Future of OI Research! Complete the Impact Survey Today
We’re delighted to announce that The IMPACT Survey is now LIVE and will be open until September 10, 2021! The IMPACT Survey is an international survey aimed at capturing and…
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The Current State of OI Research: An Update for the OI Community
On Wishbone Day, Cameron Penn (President of the OIF Board of Directors) interviewed Dr. Brendan Lee (Principal Investigator for the Brittle Bone Disease Consortium (BBDC)). During this session, they discussed…
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