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Cardiopulmonary Study (Hospital for Special Surgery (HSS)

Hospital for Special Surgery (HSS) is sponsoring a pilot study in which researchers are exploring respiratory function and its relation to quality of life, type of OI, presence of scoliosis/chest wall deformity, and other factors such as age or co-existing co-morbidities.

Individuals 15 years of age or older who have a diagnosis of OI are eligible for this single-visit research study, which aims to enroll 50 participants.

If you have any interest in enrolling in the pilot research study, Hospital for Special Surgery in New York City is actively recruiting study participants. If you have any questions about the study or your eligibility, please reach out to Chloe Derocher at (212) 774-2355 or [email protected].

HSS is committed to protecting the privacy of your information and wants you to understand how information you provide will be used and protected. Everyone who sees your information has agreed to protect it. Published study results will not contain information that could identify you. Whenever possible, all information that identifies you will be removed before your information is shared. If you do not agree to participate in this study, it will not affect the health care you receive. You may revoke your permission to use your information in this study by writing to the study contact. If you have any questions about how your information will be used and protected, please contact Chloe Derocher at (212) 774-2355 or [email protected].

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