The purpose of this study is to understand the mental health concerns, psychosocial functioning, and priority treatment needs of individuals with OI.  This study addresses an under-researched aspect of health critical to the well-being of the OI community, namely psychological health. Participants will meet with a researcher over a secure teleconference platform for about 1 hour and complete a series of questionnaires about mental health, physical health, quality of life, social well-being, and experience with health care professionals. Participants are compensated $50.

This information may help develop psychological interventions personalized for people with OI. Please share information about this study with any adult with OI that you believe may be interested in participating.
If you are interested in participating and want to see if you are eligible, please complete the following interest survey: https://redcap.research.bcm.edu/redcap/surveys/?s=FJMYJ8WYAE7C38FK

If you have any questions about the study, please email [email protected] or call (713) 798-0117. Please find more information on this study here.