Research Fund

The Osteogenesis Imperfecta Foundation is undertaking a focused effort to raise new funds to ensure the continued support of our essential research priorities. Historically, OI research has received funding from other sources in addition to funding received from the OI Foundation. To ensure continuity and to keep the current aggressive pace of research that is helping to find new treatments, the OI Foundation is working to fill the potential funding gaps in OI research.

The Michael Geisman Fellowship Grant program awards funding up to $50,000 per year, for two years, to postdoctoral trainees who are currently working on projects with clear relevance to osteogenesis imperfecta, or who have projects that will enable them to develop expertise in OI research. Early-stage investigators are particularly vulnerable during this challenging time and the OIF has a strong commitment to keep them studying OI and rare bone disease.

Expert Consensus Meetings foster collaborations within the medical and patient communities that help to define and advance treatment options for individuals with OI. These working groups address issues that affect mortality and morbidity in people with OI including cardio-pulmonary issues; gastrointestinal issues; dealing with chronic and acute pain; and addressing women’s health issues including pregnancy, postpartum issues, and issues that arise during aging.

Adult Care Initiative brings together patients, caregivers, clinicians, and health researchers to address the issue of transition of care and access to adult care for individuals with rare bone diseases. This research identifies current gaps, barriers, and challenges individuals face, and the potential causes behind them. It also focuses on guidelines to address the issue of finding knowledgeable primary care and suitable specialty support.

The Annual OI Scientific Meeting brings together more than 100 clinical and basic scientists each year to share groundbreaking research and develop scientific collaborations to accelerate the research process.

Clinical Research Sites of the Brittle Bone Disorders Consortium have worked together for the past 10 years to develop research studies including a vital 1,000-person natural history study of people with OI now in its 15th year of data collection.

Our goal is to raise $250,000 by December 31, 2025, and a total of $500,000 by June 30, 2026 to maintain the pace of OI research we have worked so hard to establish over the past 10 years.

Thank you for your support!