Author: Delores Selivon

Special Virtual Office Hours Event: Impact Grants: 101

Posted on by Delores Selivon

Special OIF Virtual Office Hours Event: Impact Grants: 101

                                Join OIF Health Educator Jessica Ransome to learn more about the Jeanie Coleman Impact Grant Program during a special office hours event, Impact Grants: 101 on Tuesday, February 15 at 7PM ET. Log on to learn more about the Impact Grant program, walk through the application process, and ask questions.

To register for the session, please CLICK HERE

To register for the session, please CLICK HERE

For more information please contact Jessica Ransome at Jransome@oif.org or 301-947-0083.

WHAT IS AN IMPACT GRANT? The Children’s Brittle Bone Foundation (CBBF) / OI Foundation Jeanie Coleman Impact Grant program provides direct support to individuals and families living with OI in need of equipment or services that will improve their quality of life. Items that have been awarded in the past include wheelchairs, orthotics, hearing aids, and modified vans. The application deadline is February 25, 2022

CLICK HERE TO APPLY FOR AN IMPACT GRANT

 

Registration is now open for the OIF Virtual Conference!

Posted on by Delores Selivon

On July 10-11, 2021, the OI Foundation will host the 2021 Virtual OIF National Conference. The conference will provide live online versions of some of the most popular informational and social sessions at the biennial OIF National Conference, including Navigating a New Diagnosis, OIF Research Update, Pediatric and Adult Health Panels, Women’s Health, Ask the Expert, and more! To view the full program and to register to attend, please visit www.oif.org/virtualconference!

The Current State of OI Research: An Update for the OI Community

Posted on by Delores Selivon
On Wishbone Day, Cameron Penn (President of the OIF Board of Directors) interviewed Dr. Brendan Lee (Principal Investigator for the Brittle Bone Disease Consortium (BBDC)). During this session, they discussed the history of the BBDC and current OI research, as well as answered audience questions. Watch this recorded session at https://youtu.be/UU-B7XCM45E.
More information on osteogenesis imperfecta (OI), the OIF, and the BDDC can be found at www.oif.org.

Special Virtual Office Hours Event: Mom, Me, & Tea

Posted on by Delores Selivon

On Tuesday, May 11th, join OIF Health Educator, Jessica Ransome, for a special office hours event, Mom, Me, & Tea at 6:00 pm ET. Log on to learn more about the new OIF resource, Navigating a New Diagnosis: A toolkit for parents and medical professionals as well as the popular Bone China Tea fundraising campaign. This event is perfect for families with a new diagnosis interested in learning more about osteogenesis imperfecta and supporting the work of the OI Foundation.

Click here to register for the event or go to https://zoom.us/meeting/register/tJEpdu6vqTktH914AOK3jbG-Af5PuyDFIXDm.

Mother’s Day Honor Gift Campaign

Posted on by Delores Selivon

From now until the end of May let a wonderful mother figure in your life know how much you appreciate them by making a gift in honor of them to the OI Foundation. We will send a special Mother’s Day card to the person that means everything to you! To make a Mother’s Day honor gift, visit www.oif.org/donate and select ‘Memorial or Honor Gift’ from the dropdown and then ‘Mother’s Day Honor Gift’ as gift type.

THE OIF POPCORN STORE IS OPEN!

Posted on by Delores Selivon

The OI Foundation’s Double Good Popcorn Store is officially OPEN!

You can feel good about ordering these salty or sweet treats – not only will delicious popcorn be delivered to your doorstep, but 50% of sales will be donated to the OI Foundation! Double Good popcorn is a crowd favorite and perfect for gifts, so be sure to order a few extra for friends and family. With sixteen different flavor options, there is something for everyone!

CLICK HERE to place your popcorn order today.

The OIF popcorn store will close at 1:00pm EST on Friday, May 7, 2021

COVID-19 Vaccine Resources

Posted on by Delores Selivon

The OI Foundation is making every effort to provide the most up to date information about the COVID-19 pandemic for the OI community. Results from the OIF’s second COVID-19 Survey  found that 81% of those not yet vaccinated say they will definitely or likely get the vaccine once available to them. We would like to encourage you to check out the  Vaccine Finder below to assist with searching for vaccines in your area. The Vaccine Finder is a resource operated by Boston Children’s Hospital and supported by the Centers for Disease Control and Prevention and the United States Digital Service. Resources like the Vaccine Finder are one of many included in the OIF’s COVID-19 Tookit.  If you have questions about COVID-19 and OI, please contact the OIF at bonelink@oif.org.