“OIF MAC member Dr Hollis Chaney recently participated in a panel discussion on “The Importance of Rare Disorder Advocacy” for rare conditions like OI. You can see a recording of the panel discussion moderated by Greatness Adewumi here: https://youtu.be/KeTZ_Z9N8RE?si=RjSv1HFLi2EqoWWU
Author: Kenna Coleman
NEW Sexual Health and OI Factsheet
With the help of Michelle Fynan, PhD, LMHC and Deborah Krakow, MD, the OIF has recently published a medically verified Sexual Health and OI factsheet. The Sexual Health and OI factsheet covers sexual self-esteem, common concerns, considerations, sexual health wellness checks, focus on pleasure and more. To read the new Sexual Health and OI factsheet, click HERE
Webinar: Accessible Travel 101
With the OIF National Conference 2024 happening this summer, the OI Foundation invited OI community members to attend a webinar on accessible travel. Speakers Aaron Busch and Joshua Werner shared information about research, planning, and commencing a trip for the wheelchair-dependent traveler.
Speakers
Aaron Busch
Aaron is a seasoned Accessible Travel Specialist with over four years of industry expertise, coupled with a rich twenty-year journey through the lens of a firsthand disability perspective.
Joshua Werner
Joshua, whose adventurous spirit and life with Osteogenesis Imperfecta has taken him across continents – from the castles of Scotland to the landscapes of South Africa. Traveling with a service dog and a power wheelchair, Joshua’s journey through countries like England, Germany, Ireland, and Canada, as well as extensive travels within the United States, have equipped him with a wealth of practical insights.
