OI Clinic Directory

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OI Clinic Directory

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The OI Foundation recognizes that one of the difficulties that many OI community members face is finding a team of medical professionals who are familiar with working with this disorder. The purpose of this directory is to provide you and your family with accurate, verified, and easily accessible information to assist you in locating dependable multidisciplinary medical care.

All information included in the directory is provided by a representative of each clinic. Please note that this list is offered as a service. Being listed does not indicate that the OI Foundation endorses services and quality of care provided by these institutions. It is the responsibility of parents and adults with OI to verify whether a particular medical team meets their needs.

Physicians Directory

The OIF Information Center maintains a list of medical professionals (i.e. general physicians, dentists, specialists) who have experience treating patients with osteogenesis imperfecta (OI). To locate care in your area, please email [email protected].

Clinic Directory

STATE	CLINIC	Website	Phone Number	Services (Children or Adult)
ALABAMA	Metabolic Bone Clinic Children’s of Alabama Birmingham, AL 35233	Website	205-638-5025 (Dr. McCormick) 205-638-5027 (Dr. Ashraf)	Children
ARIZONA	Children’s Clinics Comprehensive Care for Kids &Teens Tucson, AZ 85712	Website	520.324-KIDS (5437) Toll Free: 1-800-231-8261 ext. 45437	Children & Young Adults
ARIZONA	OI Clinic Phoenix Children's Hospital Phoenix, Arizona 85016	Website	602-933-3094	Children and Young Adults
CALIFORNIA	Children's Hospital Los Angeles (CHLA) Pediatric Metabolic Bone Disorders Clinic	Website	323-361-4606	Infants, Children, Adolescents
CALIFORNIA	Osteogenesis Imperfecta Clinic CHOC Hospital 1201 W. LaVeta Orange, CA 92868	Website	714-997-3000	Pediatrics, up to age 21
CALIFORNIA	Pediatric Bone Disorders Program Mattel Childrens Hospital UCLA Witherbee Foundation Children’s Health Center Los Angeles, CA 90095	Website	(310) 206-6987	Pediatric services
CALIFORNIA	Shriners for Children Medical Center Orthopaedics Pasadena, CA 91105	Website	626-389-9300
CALIFORNIA	Shriners Hospitals for Children — Northern California Orthopaedics Sacramento, CA 95817	Website	916-453-2191	Children
CALIFORNIA	The Kaiser Regional Skeletal Dysplasia Program Oakland, CA 94611	Website	510-752-5101	Children and adults (Kaiser Health Plan Insurance Only)
CALIFORNIA	Stanford Childrens Health/Lucille Packard Children’s Hospital Stanford - Bone Health Palo Alto, CA 94304	Website	(650) 721-1811	Pediatric services
CALIFORNIA	Tijuana Ambulatory Clinic 22010 Tijuana, B.C.	Website	664-977-2500	Up to Age 18
CALIFORNIA	UCSF (University of California San Francisco) Metabolic Bone Clinic	Website	(415) 353-2350
CALIFORNIA	Genetic Medicine and Metabolism (Multidisciplinary Services-Orthopaedics) Valley Children’s Healthcare Madera, CA 93636-8762	Website	559-353-3000	Children
CALIFORNIA	Metabolic Bone Clinic Cedars-Sinai Los Angeles, CA 90048	Website	301-423-3870	Age 2 and older
COLORADO	The General Orthopedics Program Orthopedics Institute at Children's Hospital Colorado Aurora, CO 80045	Website	720-777-6600	Children, adolescents, and young adults
CONNECTICUT	Connecticut Children’s Center for Rare Bone Disorders (Center for Osteogenesis Imperfecta) Connecticut Children’s Diabetes & Endocrinology Farmington, CT 06032	Website	(860)837-6700	All Ages
WASHINGTON, DC	Childrens National Bone Health Program Rare Disease Institute Genetics and Metabolism Skeletal Dysplasia Clinic Children's National-Main Hospital Washington, DC 20010	Website	202-476-2112 202-476-2187 202-476-5778	Rare Disease Institute Genetics and Metabolism-Children and Adults
DELAWARE	Osteogenesis Imperfecta (OI) Program Nemours/Alfred I. duPont Hospital for Children Wilmington, DE 19803	Website	(302) 651-4111	Prenatal - 35 years of age
FLORIDA	Osteogenesis Imperfecta Program Nemours Children’s Hospital Orlando, FL, 32827	Website	407-650-7715	0-18 years old
GEORGIA	OI Clinic at Children’s Healthcare of Atlanta Atlanta, GA	Website	404-785-5438 Email: [email protected]	Children up to age 21
HAWAII	Shriners Hospitals for Children — Honolulu Orthopaedics Honolulu, HI 96826	Website	808-941-4466	Children
ILLINOIS	Osteogenesis Imperfecta Clinic Shriners Hospitals for Children — Chicago Chicago, IL 60707	Website	773-622-5400	Children
INDIANA	Bone Dysplasia Clinic Riley Hospital for Children at IU Health Indianapolis, IN, 46202	Website	317-944-5000	Children & Adults
LOUISIANA	Shriners Hospitals for Children — Shreveport Orthopaedics Shreveport, LA 71103	Website	800-830-0606	Children
MASSACHUSETTS	Boston Children's Hospital Orthopedic Center Boston, MA 02115	Website	617-355-6021 International: +1-617-355-5209	Children & Young Adult
MASSACHUSETTS	Metabolic Bone Disease Clinic Shriners Hospitals for Children — Springfield Springfield, MA 01104	Website	413-787-2000	Children
MARYLAND	Johns Hopkins Pediatric Orthopaedic Surgery Baltimore, MD	Website	443-997-2663	Children
MARYLAND	Johns Hopkins Bayview Metabolic Bone and Osteoporosis Center Bayview Musculoskeletal Center Baltimore, Maryland 21224	Website	(410) 955-3663	Adult
MARYLAND	Osteogenesis Imperfecta Clinic Kennedy Krieger Institute Baltimore, MD 21205	Website	(443) 923-2703	Children & Adults
MARYLAND	Pediatric Longitudinal Program in OI National Institutes of Health	Website	800-411-1222
MICHIGAN	Department of Pediatric Orthopaedic Surgery University of Michigan C.S. Mott Children’s Hospital Ann Arbor, MI 48109	Website	734-936-5780.	Children
MINNESOTA	Interdisciplinary Osteogenesis Imperfecta Clinic Gillette Children's Specialty Healthcare St. Paul, MN 55101	Website	651-291-2848 / 800-719-4040	Children
MISSOURI	Skeletal Dysplasia Program Missouri Orthopaedic Institute Columbia, MO	Website	(573)-882-2663	Children
MISSOURI	Hospital St Louis Children’s Hospital for Kids Barnes Jewish Christian Hospital for Adults St. Louis, MO 63110	Website	314-454-6093	Children and Adults
MISSOURI	Kidney Center Bone and Mineral Disorder Clinic (Nephrology) Children's Mercy Kansas City Kansas City, MO 64108	Website	(816) 234-3030	Children
MISSOURI	Hospital St Louis Childrens Hospital for Kids and Barnes Jewish Christian Hospital for adults 1 Childrens Place, St Louis, MO 63110	Website	(314) 454-6093	Children & Adults
NEBRASKA	Osteogenesis Imperfecta Clinic at Children's Nebraska Omaha, NE 68114	Website	402-955-6300	Children
NEBRASKA	University of Nebraska Medical Center Diabetes Clinic	Website	402-559-8700	Adult OI care
NEW MEXICO	New Mexico Clinic Research & Osteoporosis Center - Research & Osteoporosis Center Albuquerque, NM 87106	Website	(505)-855-5525	Adults
NEW YORK	The Kathryn O. and Alan C. Greenberg Center for Skeletal Dysplasias Hospital for Special Surgery New York, NY 10021	Website	(212)-774-7332	Children & Adults
NEW YORK	OI Clinic – Lerner Children’s Pavilion Hospital for Special Surgery Dr. Daniel Green Dr. Jessica Heyer New York, NY 10021	Website	212-606-1267	Pediatric & Adults
NEW YORK	Pediatric Bone Health Program/Metabolic Bone Disease Clinic Golisano Children's Hospital Rochester, NY 14642	Website	(585) 275-2901	Children-Pediatric
NEW YORK	Clinic for Pediatric Bone Health Hassenfeld Children’s Hospital at NYU Langone New York, NY 10016	Website	(212)-263-5940	Children
NORTH CAROLINA	Atrium Health Levine Children’s-Children’s Specialty Center Charlotte, NC 28203	Website	(704)-381-8840	Children
OHIO	Osteogenesis Imperfecta Clinic Akron Children's Hospital Akron, Ohio 44308	Website	330-543-5539	Children & Adults
OHIO	Metabolic Bone Clinic Nationwide Children's Hospital Columbus, OH 43205	Website	(614) 722-6200	Children
OHIO	The Skeletal Dysplasia Center at Cincinnati Children’s The Connective Tissue Clinic at Cincinnati Children’s Cincinnati Children's Hospital Medical Center Cincinnati, OH 45229	Website	513-636-4760	Children & Adults
OKLAHOMA	Metabolic Bone Disease Clinic OU Children's Physicians Building Oklahoma City, OK 73104	Website	405-271-3303	Children
OKLAHOMA	Dr. James Webb and Associates Tulsa, OK 74133	Website	918-260-9322	Adults
OREGON	Shriners Hospitals for Children – Portland	Website	503-221-3422	Children
OREGON	Bone and Mineral Unit OHSU Portland, OR 97201-3098	Website	503 494-1385	Children & Adults
OREGON	Pediatric Genetics Program Randall Children’s Genetics and Metabolism Portland, OR 97227	Website	503-413-4505	Children
PENNSYLVANIA	Shriners Hospital for Children Orthopaedics Philadelphia, PA 19140	Website	215-430-4000	Children
PENNSYLVANIA	Division of Translational Medicine and Human Genetics Hospital of the University of Pennsylvania Philadelphia, PA 19104	Website	(800)-798-7366	Children & Adults
PENNSYLVANIA	Center for Bone Health Children's Hospital of Philadelphia Philadelphia, PA 19104-4399	Website	1-877-972-2663	Children
TENNESSEE	Program for Metabolic Bone Disorders at Vanderbilt -Adult Clinic Vanderbilt Medical Center Nashville, TN 37232	Website	(615) 936-8866	Adults
TENNESSEE	Metabolic Bone Disease Clinic Monroe Carell Jr. Childrens Hospital at Vanderbuilt Nashville, TN 37232	Website	(615) 936-8866	Children
TEXAS	Skeletal Dysplasia Program Texas Children's Hospital Texas Medical Center	Website	(832)-822-4298	Children & Adults
TEXAS	Adult Genetics Clinic Baylor Medicine	Website	713–798–7820	Adults
TEXAS	OI Coordinated Care Center Texas Scottish Rite Hospital for Children Dallas, Texas 75219	Website	214-559-8670	Children & Adolescents
TEXAS	OI Clinic - Baylor College of Medicine at Christus Children's San Antonio, TX 78207	Website	210-704-3611	Children up to age 18
UTAH	Osteogenesis Imperfecta Clinic Shriners Hospital for Children - Salt Lake City Salt Lake City, Utah 84103	Website	(801)-536-3777	Children
VIRGINIA	CHKD's Center for Bone Health Children's Hospital of The King's Daughters Norfolk, VA 23507	Website	(757) 668-6640	Children
WASHINGTON	Shriners Hospitals for Children-Spokane Orthopaedic Spokane, WA 99218	Website	(509)-623-0431 Toll-free: (888)-895-5951	Children up to age 18
WASHINGTON	Skeletal Health Program Seattle Children's Hospital Main Campus Seattle, WA	Website	(206)-987-2000 (866)-987-2000 (toll-free) (206)-987-0391 (TTY)Orthopedics	Children & Adults
WASHINGTON	Genetic Medicine Clinic Center on Human Development and Disability Center Seattle, WA 98195	Website	(206)-598-4030	Adults
WISCONSIN	Pediatric Bone and Mineral Metabolism Clinic American Family Children's Hospital Madison, WI 53792	Website	(608)263-6428	Children
CANADA	The Bone Health Clinic The Hospital for Sick Children Toronto, ON M5G 1X8, Canada	Website	416-813-7654 ext. 201768	Children
CANADA	Metabolic and brittle bone disease Shriners Hospital for Children Montreal, Quebec	Website	514-282-6971	Children