OI Clinic and Bone Health Town Hall (Virtual)

Please join us for the next biannual OI Clinic and Bone Health Town Hall biannual meeting on Thursday, May 29th, from 6:00pm – 8:00pm, Easter. OI Clinic and Bone Health Town Hall meetings provide a unique opportunity for medical professionals who treat patients with OI, and those who are interested in bone health, to connect with each other, stay up to date on OI care topics, and learn about OIF resources.

The meeting will take place virtually on May 29, 2025, from 6:00pm – 8:00pm ET. Register for this meeting HERE

Recordings of past OI and Bone Health Clinic Town Hall meetings can be found HERE

AGENDA 

6:00pm—6:05pm           Welcome Remarks

Laura Tosi, MD, Meeting Chair, Children’s National Hospital

6:05pm – 6:15pm           Updates from the OIF: Regional Conferences, National Conference, OIF Toolkits, Impact Grant and More

Kenna Coleman, MS, CHES, OI Foundation

6:15pm – 6:45pm           Basilar Invagination (BI) and Craniocervical Issues in OI

Suken Shah, MD, Nemours Children’s Health – Delaware

6:45pm—6:55pm           Discussion on BI and Craniocervical Issues in OI

6:55pm—7:15pm           Pregnancy and OI

                                             Deborah Krakow, MD, UCLA Health

7:15pm—7:25pm           Discussion on Pregnancy and OI

7:25pm—7:45pm           Fracture Rates in OI From the BBDC Study

Sandesh Nagamani, MD, Baylor College of Medicine

7:45pm—7:55pm           Discussion on Fracture Rates in OI From the BBDC Study 

7:55pm—8:00pm           Closing Remarks