Mental Health and OI (Virtual)

Join the OI Foundation for a research update on Wednesday, May 14 at 8:00pm EST!

In this session, Dr. Eric Storch of Baylor College of Medicine will provide an overview of the OI Wellbeing Study—a multi-phase research initiative examining the experiences and mental health of individuals with osteogenesis imperfecta (OI). He will highlight key findings from Phase I qualitative interviews with caregivers, adults and children with OI, and clinicians, covering topics such as pain management and pediatric mental health. Dr. Storch will also present updates on the longitudinal data collection on health outcomes across different age groups at nine participating sites. Finally, he will share emerging insights from the Phase III quantitative study on adult psychosocial well-being.

CLICK HERE TO REGISTER TO ATTEND

This session is part of a series meant to demystify and contextualize medical research from the Brittle Bone Disorders Consortium (BBDC). The BBDC is a multicenter initiative that focuses on understanding and providing better treatment options for osteogenesis imperfecta.

As a partner of the OIF, the BBDC has 3 major goals:

• Gain a better understanding of all genetic forms of OI
• Expand treatment options for those with OI
• Help guide the next generation of physicians and scientists

This series is intended for anyone who wants to learn more about OI medical research. We hope you will attend a future session!