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OIF Regional Conference: Denver, CO
May 3 @ 8:00 am - 5:00 pm MDT
This one-day in-person event will include sessions and discussions on understanding and living with osteogenesis imperfecta. OIF Regional Conferences are great opportunities for new and long-time OI community members to learn from expert speakers and meet other individuals and families in the area. Session topics will include medical and orthopedic treatments, pain management, dental and mental health, as well as moderated peer-to-peer group discussions.
Funding is available to cover registration costs!
Please contact the OI Foundation at Bonelink@oif.org to learn more.
Please let us know when registering if you would like to use Spanish interpretation.
Por favor, infórmenos al registrarse si desea utilizar la interpretación en español.
Meeting Agenda
9:00am – 9:10am Welcome Remarks
Tracy Hart, CEO, Osteogenesis Imperfecta Foundation
Dr. Cathleen Raggio, MD – Hospital for Special Surgery, New York
9:10am – 9:30am History of OI Management at Children’s Hospital Colorado
Ellen Elias, MD, FAAP, FACMGG –Geneticist/Pediatrician, Children’s Hospital Colorado
9:30am – 10:00am Journey of OI
Dr. Cathleen Raggio, MD – Pediatric Orthopedic Surgery, Hospital for Special Surgery
10:00am – 10:15am Break
10:15am – 10:45am Bisphosphonate Use in Children with OI
Nina Ma, MD – Endocrinologist, Children’s Hospital Colorado
10:45am – 11:15am Medical Management of OI in Adults
Dr. Arwa Elsheikh – Endocrinologist, University of Colorado School of Medicine
11:15am – 11:45am Surgical Management of OI
Dr. Klane White – Orthopedic Surgeon, Children’s Hospital Colorado
11:45am – 12:15pm Genetics and OI
Janet Bell, Ph D. – Clinical Genetic Counselor, Children’s Hospital of Colorado
12:15pm – 1:00pm Lunch
1:00pm – 1:30pm The Heart and Lungs in OI
Dr. Robert “Sandy” Sandhaus MD, PhD. – Pulmonologist, National Jewish Health
1:30pm – 2:00pm PT and Rehab Considerations for OI
Amy Kanallakan, MD – Physical Medicine/Rehab, Children’s Hospital Colorado & Emily Santos PT, DPT, Children’s Hospital Colorado
2:00pm – 2:30pm Stress Management and Living Well With OI
Michelle Fynan, PhD
2:30pm – 2:45pm Break
2:45pm – 4:00pm Moderated Group Discussion
Fostering Independence in Youth
Adult Life and Independent Living
4:00pm – 4:15pm Closing Remarks
Frequently Asked Questions
Location Embassy Suites by Hilton Denver Central Park4444 North Havana Street Denver, CO 80239
Hotel
We have a room block reserved at Embassy Suites by Hilton Denver Central Park for May 2, 2025 through May 4, 2025. Booking your room is simple, just select “Book a Room” to receive our group’s preferred rate of $149.00/night. Parking is complimentary for day guests and at a reduced rate of $9/night for overnight guests.
Who is the OIF Regional Conference intended for?
OIF Regional Conferences are intended for OI community members and their families who live in the local area or region of the event. These are one-day meetings designed to provide opportunities to learn more about osteogenesis imperfecta and current treatment options. Individuals with all types and severities of OI are welcome to attend.
Will I be able to speak with experts and have my health concerns addressed?
There will be a designated time during each session for Q&A, and we encourage everyone to ask questions and participate.
Will there be information on adult OI health?
Yes! When relevant, speakers will address both adult and pediatric health concerns.
How much does the OIF Regional Conference cost to attend?
Registration for adults is $35 per person and free for children under the age of 12. Scholarship opportunities are available to cover registration costs for attendees. Please email Bonelink@oif.org to learn more.
Is the OIF Regional Conference: Denver, CO replacing the OIF National Conference?
No, it is not replacing the OIF National Conference. While OIF Regional Conferences have some similarities with OIF National Conferences, they are distinct programs
with different goals. Regional Conferences are intended for local community members and highlight local resources and physician speakers in a shorter and more intimate meeting format.
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Thank you to our sponsors!
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