OIF Career Opportunity

The Osteogenesis Imperfecta Foundation is seeking the following:

Position Title:    Manager of Grants and Special Projects – Reports to Chief Program Officer

Position Overview:  The OIF is seeking a qualified person to manage the existing and future relationships with funders and supporters of specific projects that will work toward improving the quality of life for people living with OI.  (www.oif.org)

Projects may include outreach materials for the OI community as well as one time meetings and programs for constituents and medical professionals.  The candidate will also be asked to take the lead staff role in projects as needed.  Funders include pharmaceutical companies, government agencies, and private foundations.

The qualified candidate will also be working with funders to complete reports that confirm successful completion of agreed upon milestones and deliverables and will be working with potential new funders to seek support for new projects.

Position Responsibilities:

  • Manage all paperwork from funders and submit timely reports.
  • Work closely with project leads to be sure all funding requirements are met.
  • Attend all meetings for existing funded projects and serve as administrative lead for coordinating those meetings.
  • Serve as the lead staff person managing the steering committee of the Rare Bone Disease Alliance (RBDA), an OI Foundation program. Duties include communicating with steering committee members, preparing meeting agendas, and coordinating a year-long program calendar of events/activities.  Duties also include submitting funding requests to pharmaceutical companies and other related industries for support of the RBDA.
  • Work closely with Chief Program Officer and Chief Executive Officer to manage the success of the grant funded programs and projects.


  • The successful candidate will have a Bachelor’s Degree in business, social work, education, or a related field.
  • The successful candidate will have 2 years of experience working with a patient advocacy organization, hospital, or other not for profit organization that works directly with a patient community.
  • Strong written, organizational, and verbal communication skills required.

Position Specifics:

  • The position is virtual and the candidate can be located in any part of the US.
  • The OIF offers a competitive benefits package.
  • Salary is competitive and commensurate with experience.

To apply for this position, please contact Tracy Hart at