Are you or your child living with OI? Are you a caregiver or clinician who cares for someone with OI?
In partnership with the OIF, researchers at Baylor College of Medicine are conducting a study to better understand the mental health and pain experiences of the OI community. You will have the opportunity to share your individual experiences and discuss what you think could be improved for people living with OI. Your feedback will inform future research in this area.
For this first phase of the study, the study team aims to recruit 50 families, though larger studies will follow. Taking part in the study includes participating in an approximately one-hour online interview and the completion of a questionnaire, for which you will be compensated $50.
If you or your child are interested in participating in the study, please fill out the survey at the following link: https://bit.ly/OIWellbeing
For any other inquiries about the study, please contact the study team at OIWellbeing@bcm.edu or (713) 798-8563 for more information.
BCM IRB Approval: H-49741