In 2021, the Osteogenesis Imperfecta Foundation (OIF), the Osteogenesis Imperfecta Federation Europe (OIFE), and Mereo BioPharma collaborated closely to launch the IMPACT Survey. The goal of this project was to capture and quantify the real impact OI has on the lives of people with OI, their families, and caregivers. We were thrilled that more than 2,200 OI community members from 66 countries participated in this survey.

The most recent article to be published based off the survey is titled “The IMPACT Survey: The Humanistic Impact of Caring for an Individual with Osteogenesis Imperfecta” and presents data on caring for individuals with OI and the impacts on quality of life. Learn more at https://doi.org/10.1007/s12325-025-03372-8.